Skip to main content

Show me the DATA...trying to get my head around the Cancer problem!



Many of us have a very personal Cancer Experience....but after reading FACTFULNESS I'm seriously suspicious of my own preconceptions, so here I'll try to collect data sources on Cancer. Thank you for adding your favourite resources!

ECIS- The European Cancer Information System



'ECIS provides the latest information on indicators that quantify cancer burden across Europe. It permits the exploration of geographical patterns and temporal trends of incidence, mortality and survival data across Europe for the major cancer entities.
The purpose of the web application is to support research as well as public-health decision-making in the field of cancer and to serve as a point of reference and information for European citizens.'

Really useful to have a tool like that actually- and it's easy to export figures, too. So- first question: 

How many Europeans die of cancer?

But then...where does this data come from? Looks like Cancer Registries will be something important to look into next...



Comments

Popular posts from this blog

#COVID19 and cancer

OPEN LETTER  TO ALL CANCER PATIENT ADVOCATES v1.0 Dear colleagues, #COVID19 is ravaging through our societies. We already see how it affects cancer patients.  Here are my thoughts. In the last weeks, we have seen in our Melanoma community that - follow-up appointments and control scans are postponed - patients are switched to treatments that are less effective but have fewer side effects, can be taken orally instead of IV or are completely taken off treatment - clinical trials are closed, leaving patients whom all other therapies have failed out off options - Stage 4 cancer patients are not being given permission to self-isolate at home 'because they had no COVID19 symptoms' - some patients on forums do not recognise the need to self-isolate and feel that 'cancer was already enough to worry about'  - a high level of anxiety and uncertainty - rampant levels of incorrect or unhelpful information  And we have no reason to believe that this would be ...

OUR Cancer Mission

Two weeks ago, I accepted to join the Horizon Europe Mission Board for Cancer. The Mission Boards- there are 5 of them, each one addressing a different and important challenge for our society- are a new approach  chosen by the European Commission to address 2 important criticisms on the former Horizon program: 1. Unclear impact 2. Citizen don't understand the value of research and innovation Missions are supposed to be larger than a mere funding program- they are there to solve a problem of our European society. My point is- if you look at the list of mission topics, the only possible conclusion is 1. they ALL matter and 2. they are interlinked. Adaptation to climate change including societal transformation; Cancer; Healthy oceans, seas, coastal and inland waters; Climate-neutral and smart cities; Soil health and food. However and it's no secret what drives me personally. Cancer- Melanoma to be precisely- killed my husband in less than a year, a few days aft...

Reducing the Impact of Cancer Pain

Unfortunately, pain is a constant companion in cancer and without doubt one of the biggest contributors to the overall suffering from cancer. According to the WHO, 55% of patients undergoing treatment for cancer and 66% of those with metastatic or terminal cancer suffer from pain. Even for those surviving cancer, pain can remain as a constant unwelcome companion and reminder of the past. FROM WHO Guidelines for the pharmacological and radiotherapeutic management of cancer pain in adults and adolescents While we were taught at Medical School that 'with modern medication, no patient should have to suffer pain', anyone in the cancer field knows how far from reality that statement is. Anyone who has ever tried to book an appointment with a pain specialist knows how hard THAT alone can be...so we need better solutions to reduce the suffering from pain. So here now comes the Cancer Pain Trello   - what do we have to do in order to reduce the impact of pain for cancer pa...